The unique epidemiological pattern of the Royal Free Hospital blazing through the hospital complex in such a short time, hitting nurses and doctors but not patients. People in the prime of life but not children was part of Acheson, Ramsay, Dowsett's reasoning for creating a new name of Benign Myalgic Encephalomyelitis.
The hospital sickness looked similar to Iceland disease but the strange demographic of the Royal Free outbreak was so unusual that Melvin Ramsay, in particular, wanted to find an agent that could explain this bizarre profile.
The Royal Free nurses called it "The Royal Freaks disease"
Melvin Ramsay wasn't happy with the ME name but believed it could serve to describe the Royal Free disease until more was known about the etiology.
In the same issue of Lancet where the editorial suggested the name benign Myalgic Encephalomyelitis, there is also an article by Ramsey titled "Encephalomyelitis simulating polymyelitis" so I guess he was ok with it being a case of Encephalomyelitis.
Absolutely Ramsay knew there were a number of diseases that cause encephalomyelitis and give the identical clinical appearance to the Royal Free outbreak.
This is why he specified that people shouldn't forget the unique epidemiological pattern of Royal Free. How it acted contagious at times while other times impossible to transmit.
How it hit nurses but not sick patients.
However, people chose not to abide by his expressed goal of solving his outbreak,
so, it will never happen. "ME" has moved on to be anything EXCEPT what happened at the Royal Free.
This is my 1st time subscribing to this link/thread...
I've mod-severe ME/CFS, since 2008.
One of my earliest & persistent symptoms, is the inability to read. If I do read, I will suffer intense & prolonged PEMS.
So, it was a wonderful surprise to see that you had included a play button, for people like myself. People who want to be informed and involved, but have physical limitations and may be bedridden.
People like me who struggle with Post Exertional Malaise Syndrome (PEMS), after doing something as simple as reading.
I am not illiterate, I'm well educated and was a voracious reader before becoming ill.
When I first became ill, I was working as a Registered Nurse in a Level 1 Trauma Center.
I worked in the Pediatric Intensive Care Unit and Neonatal Intensive Care Units.
My job required I use every bit of my knowledge, strength, wits and drop of energy to care for my patients.
I had been a RN with over 25 years experience in Critical Care Nursing.
I had received an Excellence in Nursing Award,....
AND I LOVED MY JOB!!!
In 2011, because of increasing ME/CFS symptoms, I resigned from the job I loved.
I felt unsafe to continue working.
I wouldn't risk making a mistake & putting a child's life at risk.
I have never heard of this. Thanks for providing the links. As a science person with ME/CFS who loves reading about it, this is fascinating.
The unique epidemiological pattern of the Royal Free Hospital blazing through the hospital complex in such a short time, hitting nurses and doctors but not patients. People in the prime of life but not children was part of Acheson, Ramsay, Dowsett's reasoning for creating a new name of Benign Myalgic Encephalomyelitis.
The hospital sickness looked similar to Iceland disease but the strange demographic of the Royal Free outbreak was so unusual that Melvin Ramsay, in particular, wanted to find an agent that could explain this bizarre profile.
The Royal Free nurses called it "The Royal Freaks disease"
Melvin Ramsay wasn't happy with the ME name but believed it could serve to describe the Royal Free disease until more was known about the etiology.
In the same issue of Lancet where the editorial suggested the name benign Myalgic Encephalomyelitis, there is also an article by Ramsey titled "Encephalomyelitis simulating polymyelitis" so I guess he was ok with it being a case of Encephalomyelitis.
Absolutely Ramsay knew there were a number of diseases that cause encephalomyelitis and give the identical clinical appearance to the Royal Free outbreak.
This is why he specified that people shouldn't forget the unique epidemiological pattern of Royal Free. How it acted contagious at times while other times impossible to transmit.
How it hit nurses but not sick patients.
However, people chose not to abide by his expressed goal of solving his outbreak,
so, it will never happen. "ME" has moved on to be anything EXCEPT what happened at the Royal Free.
This is my 1st time subscribing to this link/thread...
I've mod-severe ME/CFS, since 2008.
One of my earliest & persistent symptoms, is the inability to read. If I do read, I will suffer intense & prolonged PEMS.
So, it was a wonderful surprise to see that you had included a play button, for people like myself. People who want to be informed and involved, but have physical limitations and may be bedridden.
People like me who struggle with Post Exertional Malaise Syndrome (PEMS), after doing something as simple as reading.
I am not illiterate, I'm well educated and was a voracious reader before becoming ill.
When I first became ill, I was working as a Registered Nurse in a Level 1 Trauma Center.
I worked in the Pediatric Intensive Care Unit and Neonatal Intensive Care Units.
My job required I use every bit of my knowledge, strength, wits and drop of energy to care for my patients.
I had been a RN with over 25 years experience in Critical Care Nursing.
I had received an Excellence in Nursing Award,....
AND I LOVED MY JOB!!!
In 2011, because of increasing ME/CFS symptoms, I resigned from the job I loved.
I felt unsafe to continue working.
I wouldn't risk making a mistake & putting a child's life at risk.
I have been able to work since then!