Thanks Katie. I have just written to my GP practice to try and obtain LDN. Well done on your correspondence with the RCGP by the way. Like you I try to achieve positive change for PWME and I'll get back in touch about my effort with the NHS website re. their article on M.E., which was partially successful (it now contains a clear statement that GET is no longer recommended). We might be able to cooperate to obtain a more successful outcome.
Hi K.Johnstone, thanks for the post. Did LDN work for you? I'm considering trying to get it but can't afford to go private, and from what you've said the NHS is not going to help. Thanks, Michael
Hi Michael, LDN didn't cure me by any means but it greatly reduced my pain and it made me sleep better and wake up feeling more rested, which has been a huge improvement to my quality of life. I have heard that there are places in the UK where you can get it cheaper than at Harpal Clinic - I started to look into it but it got too cognitively exhausting for me and I gave up. I think if you find an NHS doctor who's particularly empathetic and independent-minded it might be worth asking them. All the best, Katie.
Thanks Katie. I have just written to my GP practice to try and obtain LDN. Well done on your correspondence with the RCGP by the way. Like you I try to achieve positive change for PWME and I'll get back in touch about my effort with the NHS website re. their article on M.E., which was partially successful (it now contains a clear statement that GET is no longer recommended). We might be able to cooperate to obtain a more successful outcome.
Hi K.Johnstone, thanks for the post. Did LDN work for you? I'm considering trying to get it but can't afford to go private, and from what you've said the NHS is not going to help. Thanks, Michael
Hi Michael, LDN didn't cure me by any means but it greatly reduced my pain and it made me sleep better and wake up feeling more rested, which has been a huge improvement to my quality of life. I have heard that there are places in the UK where you can get it cheaper than at Harpal Clinic - I started to look into it but it got too cognitively exhausting for me and I gave up. I think if you find an NHS doctor who's particularly empathetic and independent-minded it might be worth asking them. All the best, Katie.