I've heard from a few people recently that, when they pointed out to a healthcare practitioner (HCP) that PEM* is not fatigue, the HCP felt that they were just being pedantic. It seems many HCPs believe that, even if there is a difference between PEM and fatigue, the difference is just a matter of terminology and detail, not a matter or any real-world significance.
Episode of PEM definitely destroyed my life. I’ve also heard the term “Post-Exertional Symptom Exacerbation (PESE)” used interchangeably with PEM. I actually suspect doctors would respond better to that terminology. (Speaking as a doctor) ;)
I wholly agree with you. Fatigue is not the symptom of this disease because fatigue goes away with rest.
Well said.
Thank you for writing this.
So so true. More and more research has confirmed that as expected Long Covid is the same as ME/CFS.
Episode of PEM definitely destroyed my life. I’ve also heard the term “Post-Exertional Symptom Exacerbation (PESE)” used interchangeably with PEM. I actually suspect doctors would respond better to that terminology. (Speaking as a doctor) ;)