Making sense of ME/CFS
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The doctors are not OK.
Shame, medical training, gaslighting, and cycles of abuse.
Jun 3
•
K. Johnstone
12
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The doctors are not OK.
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May 2025
MCAS: A tale of two consensuses
This post is a little bit tongue-in-cheek. But only a little bit!
May 15
•
K. Johnstone
7
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Making sense of ME/CFS
MCAS: A tale of two consensuses
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9
Mast cell activation syndrome (MCAS): what it is, how to tell if you have it, and how to treat it (with or without a doctor's help)
MCAS is so medically neglected, it makes ME/CFS look mainstream. But there are ways to manage and treat it.
May 13
•
K. Johnstone
6
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Mast cell activation syndrome (MCAS): what it is, how to tell if you have it, and how to treat it (with or without a doctor's help)
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2
April 2025
Medical gaslighting: a working definition and some reflections
What is it, who gets to decide, and what functions does it serve?
Apr 17
•
K. Johnstone
17
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Making sense of ME/CFS
Medical gaslighting: a working definition and some reflections
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3
September 2024
Akureyri disease
An early outbreak of myalgic encephalomyelitis
Sep 23, 2024
•
K. Johnstone
13
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Akureyri disease
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5
Neurasthenia
An obsolete (and sexist) medical condition, and a couple of side-notes in the early history of ME/CFS.
Sep 20, 2024
•
K. Johnstone
14
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Neurasthenia
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7
I've noticed some disturbing trends in Long Covid ME/CFS research
These are mostly based on this paper by Haunhorst et al, which does have some good points, but which I found very frustrating to read.
Sep 10, 2024
•
K. Johnstone
43
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Making sense of ME/CFS
I've noticed some disturbing trends in Long Covid ME/CFS research
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10
July 2024
Myalgic encephalomyelitis, 1955-1990
Melvin Ramsay, the Royal Free Hospital outbreak, and the evolving understanding of ME.
Jul 22, 2024
•
K. Johnstone
29
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Myalgic encephalomyelitis, 1955-1990
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11
May 2024
Gordon Waddell, back pain, the subversion of the biopsychosocial model, and the UK government's development of a victim-blaming approach to…
This story begins innocently enough: Gordon Waddell was a Scottish orthopaedic surgeon who revolutionised the treatment of lower back pain.
May 30, 2024
•
K. Johnstone
11
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Gordon Waddell, back pain, the subversion of the biopsychosocial model, and the UK government's development of a victim-blaming approach to disability.
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6
NHS educational module on ME/CFS
I give it 2.5 out of 5 stars.
May 25, 2024
•
K. Johnstone
9
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Making sense of ME/CFS
NHS educational module on ME/CFS
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7
April 2024
Exercise and other forms of exertion can cause profound and lasting harm to people with ME: various forms of evidence
In this post:
Apr 8, 2024
•
K. Johnstone
14
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Exercise and other forms of exertion can cause profound and lasting harm to people with ME: various forms of evidence
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2
March 2024
Why it's important that PEM is not fatigue
I've heard from a few people recently that, when they pointed out to a healthcare practitioner (HCP) that PEM* is not fatigue, the HCP felt that they…
Mar 29, 2024
•
K. Johnstone
28
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Making sense of ME/CFS
Why it's important that PEM is not fatigue
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4
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